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last goodbye cancer diagnosis
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Posted by:
quirky ®

01/13/2024, 07:39:30
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Stopping by to say goodbye, and to say thanks, and too much more that there is not enough time to say. Well I have been posting lots on my social media that keeps me connected to so many of the people in different place I have lived, both before and after those cult years (30 years in – 1975 to 2005 and almost 20 out 2005- now). I will copy and past my story here as it is s complex and simple one, as many of you have experienced personally and/or with loved ones who received a sudden, unexpected cancer diagnosis. Choosing hospice over chemo (stage 4 pancreatic cancer) to hopefully extend my life in a quality situation instead of a difficult, painful one since I was diagnosed September 8, 2023, seems to be working. Anyway here is the first update I posted on social media:

On September 11, 2023, I posted a “life update” on FaceBook because stomach and back discomfort prompted my doctor to order an ultra sound of my abdomen, which showed a mass in my pancreas, which led to an MRI, then an oncology referral, a biopsy, and a final diagnosis of metastatic pancreatic cancer which can be treated (but not cured) with chemo to potentially add some months (4-6) to my life. After consulting with friends and family I have chosen the other option, which is to enter Hospice, a choice to forego chemo for palliative support and other services for comfort and ease. Since the initial pain that brought me to the doctor around Labor Day, has increased, I’ve had to steadily increase the potency of pain meds. At this point I can still function somewhat independently but soon I will need more help.

I am choosing to enjoy however many months I have left in the belief that palliative care, pain meds, various types of alternative care, creativity, and enjoying my friends, may also extend my life just as many months as chemo (without the debilitating side effects). On September 26th, a few weeks into this journey, as I was processing these shocks by reading and writing poetry, I wrote this poem:
-----------------------------
BOTH WAYS
home is wherever the grief washes off your hands with the most ease
~Hanif Abdurraqib, Vintage Sadness

Pain is the decider / when I am defenseless against it. / Boring a hole into my body & out
again without permission / because rogue cells host a rave / in clueless organs just doing
their jobs, assuming no malice of intent / letting the party go on & on / dawn bringing a
new twisted day, unexpected.

Can hope be the decider / changing the metaphor from war to peace? / She fought the
disease / put up a good fight / lost the battle / or / making peace with her body / grief
washed away easily / breathing deeply / in surrender / open arms allowing love to flow/
both ways.
------------------------------

So the next update I posted was in November 2023:

I wanted to tell you all what an amazing unfolding has been taking place in my life and journey. Changes that are very much a result of the love and care showered on me through renewing old friendships, some over 50 years old (none having to do with the cult except real friendships that developed from then), enhancing current ones and creating new ones. The power of connection to heal has been demonstrated to me over and over and though it seems like this journey has been going on for a long time I am so surprised to count the days from that September diagnosis to now as approaching 100 days. So brief, yet truly a lifetime.

Next Life Update:
It has been over ten weeks since the journey of cancer began for me (from symptoms, scans, tests, diagnosis and presented treatment options. On October 31st (Halloween) I signed forms to enter hospice care which at this stage is mainly regular visits with my assigned RN and social worker (both of them are amazing humans), and pain medications delivered to my door. Down the road, as needed, they provide other kinds of help including home health aids, light housekeeping and simple errands, when needed. I am still able to drive the short distance to grocery shop but do not drive at night or longer distances. These ten weeks have been a roller coaster both emotionally and physically. I have experienced the highest of highs and lowest of lows in my life. The lows pretty much have to do with pain, and learning what I can and cannot do to prevent breakthrough pain that takes a long time to reign back into control: 1) eat frequent tiny meals so the pancreas does not freak out trying to release digestive hormones etc. 2) keep a regular course of pain meds without missing any doses (hard at night when I would rather sleep that get up to eat a cracker and take a pill). But this life is the new normal. Also in the midst of this journey, the unexpected loss of a dear friend, to suicide. The highs have been: 1) alternative health practices that have been amazing (shamanic healing sessions, regular massage and reike) 2) experiencing so much love from friends, who gathered for a small intimate evening mid-October sharing food, poetry, music and love which boosted my spirits and made me realize that in Spokane I have found a tribe of writers who are committed to supporting me through my journey with positive energy and practical works. 3) I also have been lifted by tribes of friends from other places I have lived, like the musicians in Snohomish County where I could weekly share poetry and music and like Indiana, another place that became dear to me as I was privileged to share music and writing with the huge creative community of Fort Wayne, Indiana. 4) Other friends made over the years are scattered around the world and this seemingly negative diagnosis has resulted in being reconnected to old friends from decades past who reached out with love and remembrances of time spent together. I have learned the huge lesson that it is important to say how you feel about people, and what they mean in your life, while they are still here, instead of waiting until a possible memorial service. 5) And finally my main bucket list item of finally publishing a book of poems:

Life Update, Bucket List, finding purpose:
About 5 or 6 weeks ago, I was wondering what my new normal would look like and which projects I could reasonably, actually complete given my situation, energy and resources and my amazing friend, Jodi, said that if I assembled my poetry she could lay it out in InDesign and we could get a book printed by a local press and sell them for a fundraiser. Having a side gig in publishing she has the chops and connections to do that. So I pulled out my poetry MFA thesis, kept the theme structure and replaced many of the older poems with new ones I have written in the last 2-3 years. My dear friend, poetry professor & mentor, Jonathan, volunteered to secure a great location for the book release event and the book goes to the printer next week, for a release date of January 20, 2024. Working on this project has given me purpose and energy during some of the more difficult ups and downs. I am overwhelmed by all the love and support of this creative community.
Here is the blurb about the book:
In Search of Groovy poems
“Spanning the life of a free and adventuresome spirit—from childhood fantasies alongside a beloved dog to riding the rails across Alaskan wilderness to watching the world through wise and kind eyes of age—these poems of Kerry Rutherford remind us that we too are here for a while and may live in wonder, fascination, and love. You hold in your hand a life’s testament, a great gift, a spell book for conjuring not only the past, but our own present and future. Read it and travel on in the company of a funny, wise, beautiful guide as you search for your own groovy.”
~Jonathan Johnson
Professor, English, Creative Writing
Eastern Washington University

Born in Seattle, Kerry Rutherford graduated from the University of Washington in 1970 with a degree in anthropology, lived in communes on the Olympic Peninsula & then hitched north to Kodiak, Alaska. Returning to Washington to raise a child & teach public school, Kerry later spent 10 years at nonprofits in Indiana, Finally she (at 75 years old) earned two MFAs in Creative Writing, one in nonfiction & one in poetry, topping it off with a Masters in History, graduating Spring 2023. Poetry is her preferred language to express the many life experiences of the past, present & tentative future.

Sarurday January 20th 7:00 PM to 9:00 PM
SPARK CENTRAL 1214 West Summit Parkway, Spokane, WA
doors open at 6:30 pm

OK dear ex-premies, this is probably way more than you wanted or needed to read, or know, about me but it is my last word on the subject, not sure how long this last word will extend things but hopefully for as long as it does, the quality of my life will be better than it ever would have been otherwise. So happy to be “exiting” one more time with you folks instead of with any others.








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Posted by:
Marianne ®

01/13/2024, 09:59:03
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Dearest quirky, What a life you have lived and continue to live! Congratulations on your incredible academic success at 75. Advanced degrees are extremely hard work. You did it! Thank you for sharing your life journey. These last years have been tough ones and these last months and days even more so. You inspire. Your friends, near and far, old and new, inspire too. Thank you for being here and for speaking out, and for being a good friend to people who needed to hear everything that you have had to say. May you continue to be surrounded by the caring hands of those you love and who love you. Thank you for being you and for a life well lived. 






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Posted by:
Rod ®

01/13/2024, 10:26:09
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Kerry dear,
we fell out of touch after our liberation from cult.
You have led a most interesting, and artistic life.
My thoughts are with you. I volunteer in Washington where medical aid in dying (MAID) is an option. Your present situation surrounded by friends and loved ones is inspiring and humbling.
I wish you all the very best at this time in your journey... very fond regards dear.






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Posted by:
eDrek ®

01/13/2024, 10:38:10
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Kerry,

Thank you for a beautiful post for all of us to read.

I don't know what to say other than I admire your courage and your dedication to a life well lived.

BEST to you,

Jeff









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Posted by:
Susan ®

01/13/2024, 12:33:17
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I hope your last word extends as beautifully as it has so far.  Thank you for thinking to share this with all of us. My heart is with you and so grateful to have the souls here to share the journey with too. 

While I am at a loss for words, I am so touched by yours and inspired too, by all you are doing

In Search of Groovy love that. 

Thank you.






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Posted by:
13 ®

01/13/2024, 13:13:56
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Thanks for posting this, letting us know. And well done you, cracking on with your book. And just being so pragmatic with your choices after diagnosis. Inspirational.

You seem surrounded by good friends. I'm glad about that. Peace to you.

John








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Posted by:
lakeshore ®

01/13/2024, 13:54:13
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Dear Kerry,

We're humbled, overwhelmed and inspired by your love, courage and strength. These stumbling words aren't capable of conveying all the love, hugs, support and peace we wish for you.

Bob & Connie






Modified by lakeshore at Sat, Jan 13, 2024, 13:56:21

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Posted by:
lesley ®

01/13/2024, 13:55:40
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Thanks for letting us know, Kerry, it is impressive, the way you have faced it, you are going out in style.  Congrats on your book, I love the title - In Search of Groovy.

I will be wishing you all the best in the coming months, Lesley






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Posted by:
KarenK ®

01/14/2024, 14:56:16
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Hi 

Although we never directly connected through this Forum, I am very touched by your post. What a beautiful way to leave this world. Many of us here are now seniors, I am 71. I have lost 2 folks recently, one I just found out about last night. The other over the holiday.

I guess these losses are to be expected. I wish you the most peaceful passage through this transition.

Karen Kirschbaum






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Posted by:
Aquinas ®

01/14/2024, 16:27:54
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I wish you a peaceful passing and as little pain as possible during the last days of your illness. 






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Posted by:
tommo ®

01/15/2024, 06:42:57
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Dear Kerry,  although I don't know you at all your words moved me and bought a tear to my eye.  How to summarize the lessons, journey and loves of an entire lifetime?  And yes ..  Poetry a true and enduring window into the soul.  kind wishes,  Tim 






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Posted by:
AJW ®

02/01/2024, 04:29:27
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Quirky, it was sad to read your post and I admire your courage. There's an ad for Marie Curie nurses on British TV. Their message struck home with me,

"Death is not the opposite of life, it's part of life."

I'm 74 and friends and relatives seem to be leaving us with increasing regularity.
I think we're all waiting in the queue for the next train out of town.
I hope the final bit of your journey is as rich and fulfilling as the previous bit.

Anth, who no longer thinks himself wise.






Modified by AJW at Thu, Feb 01, 2024, 04:31:35

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